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|Title: ||Former Buruli Ulcer Patients' Experiences and Wishes May Serve as a Guide to Further Improve Buruli Ulcer Management|
|Authors: ||Phillips, Richard O.|
Woolley, Rebecca J.
Abass, Kabiru M.
|Issue Date: ||29-Dec-2016|
|Publisher: ||PLOS Neglected Tropical Diseases|
|Citation: ||PLoS Negl Trop Dis 10 (12): e0005261. doi:10.1371/journal.pntd.0005261|
Buruli ulcer (BU), caused by Mycobacterium ulcerans, is a neglected tropical disease frequently
leading to permanent disabilities. The ulcers are treated with rifampicin and streptomycin,
wound care and, if necessary surgical intervention. Professionals have exclusively
shaped the research agenda concerning management and control, while patients' perspective
on priorities and preferences have not explicitly been explored or addressed.
To get insight into patient perception of the management and control of Buruli ulcer a mixed
methods research design was applied with a questionnaire and focus group discussions
among former BU patients. Data collection was obtained in collaboration with a local team of
native speakers in Ghana. A questionnaire was completed by 60 former patients and four
focus group discussions were conducted with eight participants per group. Former patients
positively evaluated both the effectiveness of the treatment and the financial contribution
received for the travel costs to the hospitals. Pain experienced during treatment procedures,
in particular wound care and the streptomycin injections, and the side-effects of the treatment
were negatively evaluated. Former patients considered the development of preventive
measures and knowledge on the transmission as priorities. Additionally, former patients
asked for improved accessibility of health services, counselling and economic support.
These findings can be used to improve clinical management and to guide the international
|Description: ||An article published by PLOS Neglected Tropical Diseases and available at DOI:10.1371/journal.pntd.0005261|
|Appears in Collections:||College of Health Sciences|
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