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http://hdl.handle.net/123456789/13374
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Title: | Stroke Investigative Research and Education Network: Community Engagement and Outreach Within Phenomics Core |
Authors: | Jenkins, Carolyn Arulogun, Oyedunni Sola Mande, Aliyu T. Ajayi, Eric Calys-Tagoe, Benedict Ovbiagele, Bruce Lackland, Daniel T. Sarfo, Fred Stephen Akinyemi, Rufus...et.al |
Keywords: | Community advisory boards Community engagement Focus groups Genomics REDCap database SSA Stroke Sub-Saharan Africa |
Issue Date: | 2016 |
Publisher: | Health Education & Behavior |
Citation: | Health Education & Behavior 2016, Vol. 43(1S) 82S– 92S; DOI: 10.1177/1090198116634082 |
Abstract: | Stroke is the leading cause of neurological hospital admissions in sub-Saharan Africa (SSA) and the second leading cause
of death globally. The Stroke Investigative Research and Education Network seeks to comprehensively characterize the
genomic, sociocultural, economic, and behavioral risk factors for stroke and to build effective teams for research to address
and decrease the burden of stroke and other noncommunicable diseases in SSA. One of the first steps to address this goal is
to effectively engage the communities that suffer the high burden of disease. The purpose of this article is to describe plans to
elucidate information about knowledge, attitudes, beliefs, and practices about stroke and genomics from patients, caregivers,
and local leaders, to recruit participation in research activities and dissemination of ongoing results, as well as to facilitate
research uptake and impact within the broader communities of scientists, health professionals, policy makers, and others. We
describe the (a) study sites and their communities; (b) plans for community advisory boards, focus groups, and surveys; (c)
methods for data management in REDCap database; (d) analyses of qualitative data; (e) evaluation of community and public
engagement across multiple sites and research teams in SSA and the United States; (f) use of RE-AIM for presentation of
evaluation data; and (g) community indicators of success. This is the first of its kind public outreach engagement initiative to
evaluate stroke and genomics in SSA, and has implications as a model for assessment in other high–stroke risk populations. |
Description: | An article published in Health Education & Behavior 2016, Vol. 43(1S) 82S– 92S; DOI: 10.1177/1090198116634082 |
URI: | http://hdl.handle.net/123456789/13374 |
Appears in Collections: | College of Health Sciences
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