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Please use this identifier to cite or link to this item: http://hdl.handle.net/123456789/13374

Title: Stroke Investigative Research and Education Network: Community Engagement and Outreach Within Phenomics Core
Authors: Jenkins, Carolyn
Arulogun, Oyedunni Sola
Mande, Aliyu T.
Ajayi, Eric
Calys-Tagoe, Benedict
Ovbiagele, Bruce
Lackland, Daniel T.
Sarfo, Fred Stephen
Akinyemi, Rufus...et.al
Keywords: Community advisory boards
Community engagement
Focus groups
Genomics
REDCap database
SSA
Stroke
Sub-Saharan Africa
Issue Date: 2016
Publisher: Health Education & Behavior
Citation: Health Education & Behavior 2016, Vol. 43(1S) 82S– 92S; DOI: 10.1177/1090198116634082
Abstract: Stroke is the leading cause of neurological hospital admissions in sub-Saharan Africa (SSA) and the second leading cause of death globally. The Stroke Investigative Research and Education Network seeks to comprehensively characterize the genomic, sociocultural, economic, and behavioral risk factors for stroke and to build effective teams for research to address and decrease the burden of stroke and other noncommunicable diseases in SSA. One of the first steps to address this goal is to effectively engage the communities that suffer the high burden of disease. The purpose of this article is to describe plans to elucidate information about knowledge, attitudes, beliefs, and practices about stroke and genomics from patients, caregivers, and local leaders, to recruit participation in research activities and dissemination of ongoing results, as well as to facilitate research uptake and impact within the broader communities of scientists, health professionals, policy makers, and others. We describe the (a) study sites and their communities; (b) plans for community advisory boards, focus groups, and surveys; (c) methods for data management in REDCap database; (d) analyses of qualitative data; (e) evaluation of community and public engagement across multiple sites and research teams in SSA and the United States; (f) use of RE-AIM for presentation of evaluation data; and (g) community indicators of success. This is the first of its kind public outreach engagement initiative to evaluate stroke and genomics in SSA, and has implications as a model for assessment in other high–stroke risk populations.
Description: An article published in Health Education & Behavior 2016, Vol. 43(1S) 82S– 92S; DOI: 10.1177/1090198116634082
URI: http://hdl.handle.net/123456789/13374
Appears in Collections:College of Health Sciences

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